Artists Remake the World
The Author

The Author : Valérie Pihet

Biography

Valérie Pihet is dedicated to research and experimentation on the relationships between the arts and human & social sciences. For 5 years, she directed the arts & politics experimental programme (SPEAP), co-founded in 2010 with philosopher Bruno Latour – her partner in crime since 2002. She has, in particular, coordinated the Iconoclash exhibitions, Beyond the Image Wars in Science, Religion and Art (ZKM, 2002), Making Things Public, Atmospheres of Democracy (ZKM, 2005) and the creation and development of the prestigious Sciences-Po school media lab. Alongside writer Alice Rivières, she co-founded the association Dingdingdong in late 2012, furthering research into Huntington’s disease. She is part of the steering committee for the ‘Forum des Vies Mobiles’ – a research institute formed by SNCF and the research group Parse (Platform for Artistic Research Sweden). She is also the president of ‘Council’, directed by Sandra Terdjman and Gregory Castera.

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Investigation by Valérie Pihet
Bons Baisers de Huntingtonland", La Briqueterie, 2016 © Lika Banshoya
15 March 2018

Huntington disease

Investigation by Valérie Pihet
Bons Baisers de Huntingtonland", La Briqueterie, 2016 © Lika Banshoya

Huntington’s disease is a rare and incurable genetic disorder that leads to cognitive, motor and psychiatric degeneration, and to a gradual loss of autonomy and death. In 2012, Valérie Pihet and writerAlice Rivières founded the association Dingdingdong, whose mission is to create a framework for knowledge production that gathers personal accounts to articulate them into new, pragmatic proposals, with the goal of helping users – people with the disease or carriers of it, family and loved ones, caregivers – live the disease with dignity. The ambitious scope of the project demands that users, researchers (doctors, philosophers, sociologists, historians…) and also artists (visual artists, writers, videographers, choreographers…) find innovative ways of collaborating to explore an illness still considered an unknown planet, and to uncover narrative forms that do their experiences justice as they chronicle their adventure in progress.

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